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Posts Tagged ‘Cipto Hospital’

MCK volunteers Monica and Sarah visited the children, families and doctors at Cipto twice in the last two weeks.

 

The first was a regular visit when our volunteers were accompanied by one of our valued sponsors based in Jakarta. We spent a great deal of time with Dr Endang, visiting her Children’s Oncology outpatient’s unit and also the Emergency Room. The children’s outpatient unit sees up to 70 children a day for various medical reasons, and particularly for Dr Endang’s patients, to receive chemotherapy. We met a very shy young boy and his family, who is suffering from a tumour in his neck. His father told us the little boy is number 6 out of 7 children and through help from the government insurance scheme and MCK, his medical costs were being covered and he could continue to get treatment for his son. This timid little boy did not want his name to be known or his photo to be taken.

We were also privileged to spend time with Dr Rina, head of the Neo-natal ward, where we visited the babies. The doctors and nurses on the ward were very busy deep cleaning each ward to clear the rooms of an infection that took hold recently. We were able to view beautiful new-born conjoined twins. The doctors are hopeful for a separation as the babies are joined head-to-toe at the stomach. Amazingly the doctors were waiting on more conjoined twins to arrive on the ward.

 
The second visit was to meet with Nani, a 14 year old girl with a tumour growing in her leg. Nani was introduced to MCK via one of the international organisations in Jakarta. Nani lives with her elderly parents outside of Jakarta. Nani’s neighbour was desperately searching for help to get this poorly young girl to a hospital to receive treatment but together they could not afford to pay for the journey to Jakarta, let alone treatment for her. Happily MCK, along with the St Patricks Society Jakarta, are able to help Nani get the treatment she so desperately needs. Nani has spent the last week having many tests completed and we wait to hear what Nani’s course of treatment will be. Unfortunately we did not get to meet Nani at this time as she was resting at a homestay nearby. We’ll see you next time Nani, lots and lots of love and luck to you and all of the children and their families that we meet every time we visit the hospital.

 

 

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Last Thursday, volunteers Haidi and Inge J. visited Cipto Hospital for updates on the Infectious ward. There has been in-going renovations at the hospital and it was extremely busy at the Infectious ward as the next day everything had to be moved to some temporary facility while the new building was being constructed.

At the ward we met Halimah again (a four month old Down Syndrome baby) who is going to have an operation in her upper throat. We were told that the flap that opens and closes the windpipe was not functioning correctly. Halimah was doing good and she was happy. Doctors expect the operation to go well. We wish Halimah much strength in her surgery.

Lastly we heard Areajam, an eleven year old boy treated for an infection in the lungs who we have been supporting made such a speedy recovery that doctors have already released him to go back home. Great news!

Even though Cipto hospital was extremely busy, Dr. Rina (Neo-natal Ward) and Dr. Endang (Cancer Ward) still managed to spare us some time to chat. Thank you doctors for your time, patience and hard work.

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Volunteers Inge P, Inge J and Sarah visited Cipto yesterday to find very busy wards once again.

On the Infectious ward we met Halimah, a 4 month old baby weighing only 3kg. Halimah, a Down Syndrome baby, is fighting a number of conditions including malnutrition.  We also saw Bilbina again who, we are delighted to report, will be going home tomorrow. She is still a little poorly and will need oxygen to help her recovery.

Wahyudin is eight years old. Wahyudin has suffered from kidney disease since he was three years old and has developed peritonitis as a result. He is bearing his condition well and happy to be photographed by MCK.

Wahyudin

We are also pleased to say that Rizky and Alexander, who we met on our last visit, have both been discharged and are at home with their families.

On the Cancer ward we were able to spend a little more time with Nur Oktavia (sixteen years old) and Fauzi (fifteen years old), again two patients that we met with previously. Fauzi was sleeping well when we arrived so we talked with his grandfather. Fauzi has now received chemotherapy for his condition (mediastinal tumour) and is being monitored by the doctors. Nur Oktavia has also received her chemotherapy treatment now for a soft tissue cancer, and today will have her tracheotomy repaired. Good luck for today, Nur Oktavia.

Nur Oktavia

We met with Dini, a female and also fifteen years old with a tumour in the central nervous system. Because of its location she is paralysed as a result, however her prognosis is good once the tumour is removed. The hospital will plan her operation using money raised by MCK.

And lastly we were able to spend some time with Dr Endang (Cancer Ward) and Dr Rina (Neo-natal Ward). Like Dr Yoga (Infectious Ward), they all work so amazingly hard to ensure that the patients in their care get the best possible treatment that they can at the hospital. Without the doctors, MCK could not play a role in helping the children with their treatment costs.

Good luck children!

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MCK volunteers Haidi, Inge J and Sarah visited Cipto again last week. It was a visit of mixed emotions, meeting some very poorly children in extremely difficult circumstances, yet hearing of others that had previously been helped and were now on their way home, like Isyabella. She was discharged from the Infectious Ward, a healthy girl again after spending a month on the ward being treated for Common Bile Duct Cysts.

We also visited the newly built areas of the Neo-Natal Ward, which will offer a modern unit to maternity and baby care at the hospital. Our first stop was the incubators on the Neo-Natal Ward, where we met the twins. Still unnamed, they were born at 31 weeks and are now 1 month old. They are both suffering from Sepsis, one has stomach issues, the other has liver problems. They are currently in separate incubators. Their situation, and that of their family, is harrowing, being born to a 15 year old mother who was raped. It is likely that the twins will go to a state orphanage when they are well enough to leave the hospital.

Twins

Another little boy born early is the son of Ny Aia, he also has Sepsis. When we met him last week he was but 1 week old. His mother is homeless. And M. Rizky, born at 28 weeks, needs to have an operation for a heart defect. He has to wait until he weighs 1.8kg before the surgeons will operate – he currently weighs only 1kg. His parents are destitute, living by the railway line in Jakarta. They cannot even afford to come and visit their little boy.
Lastly we met the child of Ny Aulia, born just 11 days before our visit. This little one has many complications, including cleft palate, facial deformities, a heart defect and the organs of both a male and a female. The doctors are currently deciding on the best care plan and MCK will help with the treatment.

Ny Aulia

Next we visited the Cancer Ward, where we met two new patients, Fauzi and Nur Oktavia. At 15 and 16 years old Fauzi and Nur Oktavia are the oldest children on the ward at the moment. At the time of our visit both patients were being assessed but it is likely MCK will step in to help as Fauzi’s mum is unable to make it to the hospital due to financial worries, and Nur Oktavia will need expensive chemotherapy treatment. Many of the children on the ward are being helped by MCK.
Lastly we visited the Infectious ward where we are helping with the treatment of almost all of the patients on the ward. We met Rizky, who at 8 months old is suffering from meningitis. We are glad to report that Rizky is on the road to recovery. We also met Bilbina, 3 years old, who has pneumonia and HIV, and also Alexander, 4 years old, with malnutrition and HIV. We also met with Dhi Calyono who is 11 years old. She has a prolonged fever and cancer is supsected. A lymph node biopsy this week will confirm the diagnosis.

Rizky

For all of the babies, children and teenagers on the wards, we are so glad to be able to help you and your families. We wish you all lots of love and luck on your journey to recovery and beyond.

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It’s been a while that we have reported on our MCK patients in Cipto but we have had two visits in quick succession since our last update. Attending were MCK volunteers Inge J, Sarah and Tessa.

On both occasions we met with Ny Latifah, a gorgeous two weeks old baby who was born ten weeks premature with congenital heart disease. MCK will help Ny Latifah with her next course of treatment and can happily report that her condition is improving. We also met Ny Entin on the Neo-Natal ward. Ny Entin is suffering with hydrocephalus and in quite a poor condition. Because the parents are no longer around, MCK will step in and pay for the treatment that Ny Entin will need.  Keep strong Ny Latifah and Ny Entin, we wish you well.

On the Infectious Ward we met with An Adito, two years old boy with severe malnutrition. We are happy to report that An Adito is fighting off infection and gradually gaining weight, and that very soon he will be able to go home.

On our first visit we chatted to Michael, another two years old boy. Michael has meningitis. MCK paid for his CT scan as part of his diagnoses and treatment. We are really happy to report that by our second visit, Michael was well enough to go home.

We met a little girl, Dinda Ayu of three years old who has HIV, infections and severe malnutrition. Whilst the doctors try to clear her infections Dinda Ayu must wait for her HIV medication. Sadly Dinda Ayu lost both of her parents to HIV so her grandmother will become her main carer. Dinda Ayu has a long road ahead to health, so we hope for her to keep strong and keep fighting.

Lastly we are delighted to report the first unveiling of the extensive building and restoration work at the hospital that is so badly needed. The older babies, who were moved last year to a small ward away from the Neo-Natal unit to allow for their ward to be renovated, will be welcomed back this week. The Children’s Infectious and Cancer Wards that so desperately need to be replaced will be torn down and rebuilt in the coming months. The doctors and nurses are busy moving out of offices and administration units to prepare for the huge disruption of moving the children to their temporary wards in the hospital whilst they wait for their new home. Good luck everyone!

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On Wednesday, we were very thankful to have Sue from BWA to join us in our visit to Cipto Hospital.

Both the cancer ward and infectious ward were extremely busy. We made a special visit to see Rahmat in ICU. A twelve year old boy who we are funding as a special case along with some of the other international organizations. Rahmat has been diagnosed with Mediastinal Tumour (attached to his lung). He has had surgery, which removed 60% of the tumour and already has had two courses of chemotherapy. He will need at least three more chemotherapy courses before more tests can be done. Being in ICU meant he was not allowed visitors, not even his family. We had to view him from behind a window. We hope Rahmat stays strong, so hang on in there Rahmat!

Over at the infectious ward, we met Junaidi, a little boy of four years old. He is suffering from Viral Meningitis and Encephalitis. He is coping well with the treatment but we were sad to hear that he will be left with some brain damage.

Sadly, a patient that MCK has helped with medical treatment, a young girl called Fatma has passed away. She was fourteen years old, suffering from a cardio infection, colitis and malnutrition. Our condolences to her family.

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We are so happy to hear that last month we managed to locate the family of baby Ahma who was abandoned by her mother. MCK’s volunteer Inge J and with the help of nurses from Cipto Neonatal managed to track down the family. Let’s hope baby Ahma gets all the love and attention for growing up.

It’s been a month since our last visit at Cipto and today we met an array of patients that MCK are supporting. In the Infectious ward, Sahrul is 2.5 years old weighing only 5kg. He is suffering from severe malnutrition, Tuberculosis, and HIV (the latter being contracted through his mother). This is his second hospitalization and this time he’s been receiving treatment for two weeks now. Doctors are keeping a watchful eye on him.

Sahrul

Pictured below is Jelsia who is nearly six years old with Congenital Heart Disease. Unfortunately she also has an infection in her brain resulting in her left arm and left leg partially immobile. She will be undergoing surgery this Friday to remove the infection in her brain. We send her warm wishes to stay strong.

Jelsia sound asleep

Subiatto is fifteen years old and we were sad to hear that he has been sick for five years now. He’s been hospitalized for four weeks suffering lung infection. Doctors have already operated on him to drain a lot of fluid out from his right lung. Currently on antibiotics, his condition is being monitored through lab checks to find out the cause of the lung infection.

Subiatto

Two year old Sinta has Ascariasis (also known as worms) in her stomach. She was admitted two days ago in ER in which doctors found signs of worms in her vomit and faeces. She did not want to be disturbed but we were happy to hear that she may be able to return home to Cengkareng tomorrow.

Sinta

Over at the cancer ward, we met gorgeous looking eight year old Prichilla from Bogor. She is diagnosed with acute Leukemia and has been receiving chemo treatment for three weeks now.

gorgeous looking Prichilla

Next we met four year old Fajri suffering from acute AML. She was diagnosed one month ago and is now receiving the necessary treatment to get well. We adored her big smile when she allowed us to take a photo of her.

smiles from Fajri

Another girl we met with an adorable smile was eleven year old Dewi. She has Neuroblastoma (tumor found in her abdomen) and her eye problem came as secondary. Unfortunately her cancer is already in stage four. She was not shy to talk to us and proudly showed off her bracelet. We hope her well in her treatments.

Big smiles from Dewi

Ten year old Wawan is undergoing chemo treatment for Leukemia. Doctors class him as a high risk patient because of his poor response to the treatment. His mother told us he is the youngest in the family.

Wawan

Another patient who we met in stage four of the cancer was eleven year old Yongki. He has cancer in the ear, nose and throat and the tumor has been spreading. Doctors cannot operate on him yet until the spread is controlled. He is undergoing chemo treatment which is helping.

Yongki

Lastly we met five year old Mutia from Bekasi with an unusual case of tumor in her liver (which normally occurs in adults). She has already been operated to remove the tumor and will continue with chemo treatment.

Mutia

At the Neonatal ward, we were very honored to have Dr. Rina showing us around. There was a special case of conjoined twins which had to be isolated in a special area. Both girls are joined on the hip bone. One baby is fit and well whilst the other is not doing so good. The twins can be separated as they don’t share the same organs but doctors are worried that the weaker baby may not survive so they have decided not to operate on them until the other gets well.

Conjoined Twins

Lastly we met the most tiniest baby so far. Born just seven hours ago, 26 weeks premature and weighing only 700gsm. Baby Fitriani is suffering from problems in her lung and nurses had to help her with breathing apparatus.

Baby Fitriani

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