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Posts Tagged ‘HIV’

It was one week ago when we went to visit Cipto Hospital. Barbara (from Die Bruke) joined our MCK volunteers, Sarah, Inge J, and Haidi for our regular hospital visit.

We met a cheerful Rahmat! On his fifteen day of radiotherapy, he is bearing his treatment with such courage. Still on ventilation in ICU and severely malnourished, the doctors confirmed that the radiotherapy Rahmat has received is not shrinking the tumor on his lung. We await news on the next course of treatment for Rahmat. As we left, he waved goodbye with a smile and mouthed ‘terima kasih’ to us all.

 

Rahmat

Still at the cancer ward, we met fifteen years old Dirda, who was happily playing with a mobile phone. She was admitted into hospital with chronic leukemia but it is suspected she has the acute form. She awaits a course of very intensive treatment. We wish Dirda all the best with her forthcoming treatment. A further patient supported by MCK is Sakila, aged seven years old. She has a tumour of the bone in her leg. We wish Sakila strength on her journey through a long process of treatment.

 

Sakila

The cancer ward is undergoing some renovation at present. An isolation ward is being sectioned off at the end of the ward, but due to insufficient AC and funds the project is now on hold.
Over at the Infectious Ward, we were introduced to one year old Ardelia, who we funded as a special case. She is diagnosed with HIV and is now quite malnourished so the government has stepped in to fund treatment. A second patient, five years old Rizki, has Steven Johnson Syndrome, Brochoneumonia, Anemia, Onicomycosis and Cornea Erosion. MCK has offered to pay for his medication as a special case, though the family want to take him home.
Lastly at the neo-natal ward, Rolita is the third baby from a set of triplets. Her siblings have already gone home and Rolita is well on the way to recovery. Born at just 1.3kg she is now 1.5kg and eight weeks old. As she overcomes her pneumonia we hope she is allowed to join her family very soon.

Rolita

We also met Oey Lina who is twenty seven days old. She has many problems with her heart and also suspected Downs Syndrome. She needs diagnostic tests and further monitoring. Her family have nothing and only wish to take the baby home. MCK has stepped in to help pay for the treatment that Oey Lina needs.

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We are so happy to hear that last month we managed to locate the family of baby Ahma who was abandoned by her mother. MCK’s volunteer Inge J and with the help of nurses from Cipto Neonatal managed to track down the family. Let’s hope baby Ahma gets all the love and attention for growing up.

It’s been a month since our last visit at Cipto and today we met an array of patients that MCK are supporting. In the Infectious ward, Sahrul is 2.5 years old weighing only 5kg. He is suffering from severe malnutrition, Tuberculosis, and HIV (the latter being contracted through his mother). This is his second hospitalization and this time he’s been receiving treatment for two weeks now. Doctors are keeping a watchful eye on him.

Sahrul

Pictured below is Jelsia who is nearly six years old with Congenital Heart Disease. Unfortunately she also has an infection in her brain resulting in her left arm and left leg partially immobile. She will be undergoing surgery this Friday to remove the infection in her brain. We send her warm wishes to stay strong.

Jelsia sound asleep

Subiatto is fifteen years old and we were sad to hear that he has been sick for five years now. He’s been hospitalized for four weeks suffering lung infection. Doctors have already operated on him to drain a lot of fluid out from his right lung. Currently on antibiotics, his condition is being monitored through lab checks to find out the cause of the lung infection.

Subiatto

Two year old Sinta has Ascariasis (also known as worms) in her stomach. She was admitted two days ago in ER in which doctors found signs of worms in her vomit and faeces. She did not want to be disturbed but we were happy to hear that she may be able to return home to Cengkareng tomorrow.

Sinta

Over at the cancer ward, we met gorgeous looking eight year old Prichilla from Bogor. She is diagnosed with acute Leukemia and has been receiving chemo treatment for three weeks now.

gorgeous looking Prichilla

Next we met four year old Fajri suffering from acute AML. She was diagnosed one month ago and is now receiving the necessary treatment to get well. We adored her big smile when she allowed us to take a photo of her.

smiles from Fajri

Another girl we met with an adorable smile was eleven year old Dewi. She has Neuroblastoma (tumor found in her abdomen) and her eye problem came as secondary. Unfortunately her cancer is already in stage four. She was not shy to talk to us and proudly showed off her bracelet. We hope her well in her treatments.

Big smiles from Dewi

Ten year old Wawan is undergoing chemo treatment for Leukemia. Doctors class him as a high risk patient because of his poor response to the treatment. His mother told us he is the youngest in the family.

Wawan

Another patient who we met in stage four of the cancer was eleven year old Yongki. He has cancer in the ear, nose and throat and the tumor has been spreading. Doctors cannot operate on him yet until the spread is controlled. He is undergoing chemo treatment which is helping.

Yongki

Lastly we met five year old Mutia from Bekasi with an unusual case of tumor in her liver (which normally occurs in adults). She has already been operated to remove the tumor and will continue with chemo treatment.

Mutia

At the Neonatal ward, we were very honored to have Dr. Rina showing us around. There was a special case of conjoined twins which had to be isolated in a special area. Both girls are joined on the hip bone. One baby is fit and well whilst the other is not doing so good. The twins can be separated as they don’t share the same organs but doctors are worried that the weaker baby may not survive so they have decided not to operate on them until the other gets well.

Conjoined Twins

Lastly we met the most tiniest baby so far. Born just seven hours ago, 26 weeks premature and weighing only 700gsm. Baby Fitriani is suffering from problems in her lung and nurses had to help her with breathing apparatus.

Baby Fitriani

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This morning’s visit to Cipto Hospital was very good and informative. Melanie from the British Women’s Association kindly joined us for the visit. We managed to catch up with two of the doctors on duty who are forever busy. We are so grateful that they can even spare 5-10 minutes of their time with us.

At the infectious ward, Dr Yoga updated us on two patients that MCK have been supporting. Rifdatul is nine years old and from Kota Bekasi. She is receiving treatment for Inflammatory bowel disease (IBD) and bone disease. Currently doing very well after 3 months of treatment but is suffering severe malnutrition. Her bowel disease is more controlled now, her weight has slowly increased and there has been no signs of other infections. Weighing only 11.545kg, she remains in hospital to be monitored.

Rifdatul with mother by her side

The other patient is Andreas from Tangerang who is suffering from HIV, malnutrition and Tuberculosis (TBC). Adopted at an early age, his mother tells us he’s now four years old. He has been receiving treatment for 7 weeks now, unfortunately we learnt that he was not doing well and had not gained much weight because the infection was not controlled yet. Let’s wish him all the best to get well soon.

Andreas with his very supportive mother

Over at the Neonatal ward, Dr Rina was ever so kind to show us around. We caught them on a very busy day with a surge of babies being treated. We even saw two babies unattended in a make shift room temporarily because all the other rooms were full. Dr Rina mentioned she was very grateful to all of our donors and that the money was spent on all the babies in the ward and not just to individual special case babies.

Baby Parin Alyanti pictured here has been in care since February this year. Currently is open for adoption and ready to be placed in an orphanage but is suspected of HIV. Baby Parin cannot be placed into an orphanage until a HIV test is performed when the baby reaches 6 months of age. This will then determine what special care is needed when the baby is released from hospital. We send warm hugs to stay healthy!

Baby Parin

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Greetings once again from Mary’s Cancer Kiddies volunteers! Six months have gone by since our last newsletter. Our work with children suffering from cancer continues, and we include in this newsletter a summary of the assistance we have provided during this period. In this newsletter, though, we have decided to focus primarily on the support MCK has been providing to the infectious ward at Cipto hospital in Jakarta.

Our assistance to the infectious ward at Cipto hospital began in June 2007 in response to requests from doctors there. Funding for this support has been specially earmarked by the sponsor to provide modest financial assistance to cover one-off costs for children suffering from infectious diseases and other ailments other then cancer.

Illnesses treated at the ward include tetanus, HIV, tuberculosis, acute diarrhea and malnutrition.  Costs per diagnoses or treatment are on average Rp 90.000 (€ 7). The illnesses from which the children are suffering have often been made worse as a result of reluctance on the part of poor families to seek treatment, for fear of the high cost of doing so. Even those who are eligible to have their children’s costs covered often have to pay for initial treatments before the insurance scheme comes into effect, and this can cause considerable difficulties for families living on or close to the poverty line. MCK therefore covers costs of treatment for these children pending completion of necessary paperwork for the government insurance scheme.

Among those MCK has assisted is Andrian, a three- month-old boy, who was brought into the hospital in late December with acute diarrhoea and prolonged fever due to a suspected urinary tract infection. He was also undernourished. During Andrian’s hospital stay, his father was unable to work — he is a motorcycle taxi driver – as he stayed with his son in the hospital while his wife stayed at home with their other child. The picture shows Andrian’s father keeping his son’s spirits up with a New Year paper trumpet.

Andrian

Nursiyifah, a four- month-old girl, was admitted on the last day of the year with acute diarrhoea, encephalitis due to suspected HIV, and a suspected urinary tract infection. MCK helped by covering the cost of several lab examinations as well as medication for this little girl.

Nursiyifah

Raditya, a one-month-old baby girl came to the ward at the beginning of the year with anemia due to suspected iron deficiency. She also lacked immunization.  Due to the long holiday break, her family were unable to get the costs covered by Askeskin insurance, so the necessary lab examinations and vaccinations were paid for by MCK.

Raditya

Good news for Jabal (eight years old) who recovered from a high fever due to sepsis and typhoid and was able to go home in January. MCK paid for his blood test and medicine.

Jabal

Valencia, a ten-month-old girl, came into the hospital with broncho-pneumonia and was also undernourished. While being treated, she had acute diarrhoea be-cause her mother was not using safe hygiene methods. The hospital therefore arranged for Valencia’s mother to receive advice on how to avoid this happening in future.

Valencia

Tia, 14, was in Cipto Hospital for two weeks for treatment of typhoid fever and a urinary tract infection in early January. MCK covered the cost of several lab examinations.

Tia

MCK volunteer Astrid says goodbye and thank you to Dr. Elina, who prepared the donation reviews for the infectious ward during this period.

Dr. Elina and Astrid

Cancer treatment over the past six months

During the period October 2007-February 2008, MCK assisted in covering cancer treatments for 84 children, aged between 1 and 17 years old.

Among the children MCK helped were Ferdiansyah from Lampung who is suffering from malignant lymphoma. Most of Ferdi’s treatment is covered by the government’s Askeskin insurance scheme but some medicine prescribed by his doctor was not.

MCK also paid for an MRI for 3-year-old Nurhidayah who suffers from embriyono carcinoma, and chemotherapy medicine for 16-year-old Farbianca who has malign lymphoma and whose government insurance scheme does not cover the medicine required.

JIS group visits Dharmais Hospital

In February, seven children from JIS visited the children’s cancer ward at Dharmais Hospital to spend some time with the children there. They did a wonderful job of bringing smiles and laughter to the ward and the visit was a highlight for the sick children and their families. One of those who particularly enjoyed their visit was 14-year-old Anggun who was suffering from osteosarcoma (bone cancer) which had spread to her lungs. Sadly, Anggun passed away not long after their visit, but the JIS children helped make her final hours a little easier to bear.

Childhood cancer featured on Metro TV

In January, the popular Kick Andy television program on Metro TV was recorded at Dharmais Hospital. The program discussed childhood cancer, including interviews with survivors of the illness including 11-year-old Abiyyu, whose treatment was supported by MCK.

Premature babies unit at Cipto Hospital

MCK has provided funding over the past five months to assist with treatment costs for 160 babies in the unit whose parents were unable to pay their bills.

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