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Posts Tagged ‘Infectious Ward’

Volunteers Inge P, Inge J and Sarah visited Cipto yesterday to find very busy wards once again.

On the Infectious ward we met Halimah, a 4 month old baby weighing only 3kg. Halimah, a Down Syndrome baby, is fighting a number of conditions including malnutrition.  We also saw Bilbina again who, we are delighted to report, will be going home tomorrow. She is still a little poorly and will need oxygen to help her recovery.

Wahyudin is eight years old. Wahyudin has suffered from kidney disease since he was three years old and has developed peritonitis as a result. He is bearing his condition well and happy to be photographed by MCK.

Wahyudin

We are also pleased to say that Rizky and Alexander, who we met on our last visit, have both been discharged and are at home with their families.

On the Cancer ward we were able to spend a little more time with Nur Oktavia (sixteen years old) and Fauzi (fifteen years old), again two patients that we met with previously. Fauzi was sleeping well when we arrived so we talked with his grandfather. Fauzi has now received chemotherapy for his condition (mediastinal tumour) and is being monitored by the doctors. Nur Oktavia has also received her chemotherapy treatment now for a soft tissue cancer, and today will have her tracheotomy repaired. Good luck for today, Nur Oktavia.

Nur Oktavia

We met with Dini, a female and also fifteen years old with a tumour in the central nervous system. Because of its location she is paralysed as a result, however her prognosis is good once the tumour is removed. The hospital will plan her operation using money raised by MCK.

And lastly we were able to spend some time with Dr Endang (Cancer Ward) and Dr Rina (Neo-natal Ward). Like Dr Yoga (Infectious Ward), they all work so amazingly hard to ensure that the patients in their care get the best possible treatment that they can at the hospital. Without the doctors, MCK could not play a role in helping the children with their treatment costs.

Good luck children!

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MCK volunteers Haidi, Inge J and Sarah visited Cipto again last week. It was a visit of mixed emotions, meeting some very poorly children in extremely difficult circumstances, yet hearing of others that had previously been helped and were now on their way home, like Isyabella. She was discharged from the Infectious Ward, a healthy girl again after spending a month on the ward being treated for Common Bile Duct Cysts.

We also visited the newly built areas of the Neo-Natal Ward, which will offer a modern unit to maternity and baby care at the hospital. Our first stop was the incubators on the Neo-Natal Ward, where we met the twins. Still unnamed, they were born at 31 weeks and are now 1 month old. They are both suffering from Sepsis, one has stomach issues, the other has liver problems. They are currently in separate incubators. Their situation, and that of their family, is harrowing, being born to a 15 year old mother who was raped. It is likely that the twins will go to a state orphanage when they are well enough to leave the hospital.

Twins

Another little boy born early is the son of Ny Aia, he also has Sepsis. When we met him last week he was but 1 week old. His mother is homeless. And M. Rizky, born at 28 weeks, needs to have an operation for a heart defect. He has to wait until he weighs 1.8kg before the surgeons will operate – he currently weighs only 1kg. His parents are destitute, living by the railway line in Jakarta. They cannot even afford to come and visit their little boy.
Lastly we met the child of Ny Aulia, born just 11 days before our visit. This little one has many complications, including cleft palate, facial deformities, a heart defect and the organs of both a male and a female. The doctors are currently deciding on the best care plan and MCK will help with the treatment.

Ny Aulia

Next we visited the Cancer Ward, where we met two new patients, Fauzi and Nur Oktavia. At 15 and 16 years old Fauzi and Nur Oktavia are the oldest children on the ward at the moment. At the time of our visit both patients were being assessed but it is likely MCK will step in to help as Fauzi’s mum is unable to make it to the hospital due to financial worries, and Nur Oktavia will need expensive chemotherapy treatment. Many of the children on the ward are being helped by MCK.
Lastly we visited the Infectious ward where we are helping with the treatment of almost all of the patients on the ward. We met Rizky, who at 8 months old is suffering from meningitis. We are glad to report that Rizky is on the road to recovery. We also met Bilbina, 3 years old, who has pneumonia and HIV, and also Alexander, 4 years old, with malnutrition and HIV. We also met with Dhi Calyono who is 11 years old. She has a prolonged fever and cancer is supsected. A lymph node biopsy this week will confirm the diagnosis.

Rizky

For all of the babies, children and teenagers on the wards, we are so glad to be able to help you and your families. We wish you all lots of love and luck on your journey to recovery and beyond.

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It was one week ago when we went to visit Cipto Hospital. Barbara (from Die Bruke) joined our MCK volunteers, Sarah, Inge J, and Haidi for our regular hospital visit.

We met a cheerful Rahmat! On his fifteen day of radiotherapy, he is bearing his treatment with such courage. Still on ventilation in ICU and severely malnourished, the doctors confirmed that the radiotherapy Rahmat has received is not shrinking the tumor on his lung. We await news on the next course of treatment for Rahmat. As we left, he waved goodbye with a smile and mouthed ‘terima kasih’ to us all.

 

Rahmat

Still at the cancer ward, we met fifteen years old Dirda, who was happily playing with a mobile phone. She was admitted into hospital with chronic leukemia but it is suspected she has the acute form. She awaits a course of very intensive treatment. We wish Dirda all the best with her forthcoming treatment. A further patient supported by MCK is Sakila, aged seven years old. She has a tumour of the bone in her leg. We wish Sakila strength on her journey through a long process of treatment.

 

Sakila

The cancer ward is undergoing some renovation at present. An isolation ward is being sectioned off at the end of the ward, but due to insufficient AC and funds the project is now on hold.
Over at the Infectious Ward, we were introduced to one year old Ardelia, who we funded as a special case. She is diagnosed with HIV and is now quite malnourished so the government has stepped in to fund treatment. A second patient, five years old Rizki, has Steven Johnson Syndrome, Brochoneumonia, Anemia, Onicomycosis and Cornea Erosion. MCK has offered to pay for his medication as a special case, though the family want to take him home.
Lastly at the neo-natal ward, Rolita is the third baby from a set of triplets. Her siblings have already gone home and Rolita is well on the way to recovery. Born at just 1.3kg she is now 1.5kg and eight weeks old. As she overcomes her pneumonia we hope she is allowed to join her family very soon.

Rolita

We also met Oey Lina who is twenty seven days old. She has many problems with her heart and also suspected Downs Syndrome. She needs diagnostic tests and further monitoring. Her family have nothing and only wish to take the baby home. MCK has stepped in to help pay for the treatment that Oey Lina needs.

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We are so happy to hear that last month we managed to locate the family of baby Ahma who was abandoned by her mother. MCK’s volunteer Inge J and with the help of nurses from Cipto Neonatal managed to track down the family. Let’s hope baby Ahma gets all the love and attention for growing up.

It’s been a month since our last visit at Cipto and today we met an array of patients that MCK are supporting. In the Infectious ward, Sahrul is 2.5 years old weighing only 5kg. He is suffering from severe malnutrition, Tuberculosis, and HIV (the latter being contracted through his mother). This is his second hospitalization and this time he’s been receiving treatment for two weeks now. Doctors are keeping a watchful eye on him.

Sahrul

Pictured below is Jelsia who is nearly six years old with Congenital Heart Disease. Unfortunately she also has an infection in her brain resulting in her left arm and left leg partially immobile. She will be undergoing surgery this Friday to remove the infection in her brain. We send her warm wishes to stay strong.

Jelsia sound asleep

Subiatto is fifteen years old and we were sad to hear that he has been sick for five years now. He’s been hospitalized for four weeks suffering lung infection. Doctors have already operated on him to drain a lot of fluid out from his right lung. Currently on antibiotics, his condition is being monitored through lab checks to find out the cause of the lung infection.

Subiatto

Two year old Sinta has Ascariasis (also known as worms) in her stomach. She was admitted two days ago in ER in which doctors found signs of worms in her vomit and faeces. She did not want to be disturbed but we were happy to hear that she may be able to return home to Cengkareng tomorrow.

Sinta

Over at the cancer ward, we met gorgeous looking eight year old Prichilla from Bogor. She is diagnosed with acute Leukemia and has been receiving chemo treatment for three weeks now.

gorgeous looking Prichilla

Next we met four year old Fajri suffering from acute AML. She was diagnosed one month ago and is now receiving the necessary treatment to get well. We adored her big smile when she allowed us to take a photo of her.

smiles from Fajri

Another girl we met with an adorable smile was eleven year old Dewi. She has Neuroblastoma (tumor found in her abdomen) and her eye problem came as secondary. Unfortunately her cancer is already in stage four. She was not shy to talk to us and proudly showed off her bracelet. We hope her well in her treatments.

Big smiles from Dewi

Ten year old Wawan is undergoing chemo treatment for Leukemia. Doctors class him as a high risk patient because of his poor response to the treatment. His mother told us he is the youngest in the family.

Wawan

Another patient who we met in stage four of the cancer was eleven year old Yongki. He has cancer in the ear, nose and throat and the tumor has been spreading. Doctors cannot operate on him yet until the spread is controlled. He is undergoing chemo treatment which is helping.

Yongki

Lastly we met five year old Mutia from Bekasi with an unusual case of tumor in her liver (which normally occurs in adults). She has already been operated to remove the tumor and will continue with chemo treatment.

Mutia

At the Neonatal ward, we were very honored to have Dr. Rina showing us around. There was a special case of conjoined twins which had to be isolated in a special area. Both girls are joined on the hip bone. One baby is fit and well whilst the other is not doing so good. The twins can be separated as they don’t share the same organs but doctors are worried that the weaker baby may not survive so they have decided not to operate on them until the other gets well.

Conjoined Twins

Lastly we met the most tiniest baby so far. Born just seven hours ago, 26 weeks premature and weighing only 700gsm. Baby Fitriani is suffering from problems in her lung and nurses had to help her with breathing apparatus.

Baby Fitriani

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Dharmais hospital children’s cancer ward

Between June and December, 2009, MCK provided financial assistance to cover costs of thirty children, aged between eighteen months and sixteen years old, undergoing treatment for cancer.

One of them was eight year old Yansen, one of three children whose father works as a day labourer and whose mother is currently pregnant with her fourth child. Yansen has Acute Myeloid Leukemia (AML) and, while he was undergoing chemotherapy, his condition called for an urgent blood transfusion which was ineligible for cover by the government insurance scheme, for which MCK therefore paid.

Although the existence of government insurance schemes targeting low-income families mean that much of MCKs assistance takes the form of one-off payments for costs that are not covered, this is not always the case. For example, in September MCK was requested to contribute to the cost 13 year old Fahri’s treatment for Chronic Myeloid Leukemia (CML). After originally being treated in 2006-2007, when we had previously also provided assistance, Fahri had relapsed and so was requiring four weeks of chemotherapy. As a teacher, Fahri’s father was eligible to have some of his son’s treatment costs covered, but not all, so MCK helped to cover the shortfall.

Children’s cancer ward, Cipto hospital

During the second half of 2009, MCK provided financial assistance for treatment not covered by government insurance schemes for 60 children aged between 2 months and 16 years old.  In response to a special request from the doctors, in November, we also paid for the purchase for the ward of IV fluid, tubes and needles, as well as a small fridge for storing medicines.

Neonatal unit, Cipto hospital

The neonatal care unit is part of the perinatal unit, which in turn is connected to the maternity ward. The perinatal unit at Cipto hospital is the largest government perinatal unit in the country. It has capacity for 54 babies, divided into four units: the neonatal intensive care unit, the special care nursery, a transitional unit with four beds, and the Kangaroo Mother Care unit. The vast majority of families whose babies are treated in the perinatal unit at Cipto come from poor backgrounds and most are eligible to get the costs of treatment covered by one of the government insurance schemes designed to assist them. However some costs, such as blood cultures, are not covered by these schemes, and these are costs that MCK is often asked to cover. Likewise, the government scheme does not cover any costs incurred prior to the family being approved for insurance. Given the time lag that elapses between babies being admitted to the ward and the family completing the necessary administrative process (which itself incurs costs and so can also be a bar to their doing so), there are inevitably costs incurred before the scheme is in place. These can cause considerable economic hardship and, in some cases, can cause parents to take their babies home untreated rather than go into chronic debt. It is these costs that MCK is in principle ready to pay.

Altogether, during the second half of 2009, MCK assisted 139 babies, from new born through to 4 months old, to receive the care and treatment they needed.

At the beginning of February, MCK provided support to cover the treatment costs of premature twins, a boy and a girl, who had been born prematurely at just 37 weeks and weighing only 1.2 and 1.1 kilograms respectively. Both needed intensive treatment as a result of their premature births but, although eligible for one form of government insurance cover, this would only cover 50% of costs. The babies’ parents, a parking attendant and a housewife, had no way of paying the remainder and so elected to take one of the twins home with them. Sadly, one of the twins did not survive, though the other one has returned home.

Infectious ward, Cipto hospital

As with the other wards where MCK offers assistance, most children in the infectious ward come from underprivileged families and are therefore eligible for cover by one of the government insurance schemes. However, there are often certain costs which are not covered by these schemes for which the families then become responsible.  Although generally modest sums, they can create considerable hardship for parents who live on or below the poverty line, so MCK is often asked to pay them in order to reduce the families’ financial burden. Between June and December 2009, MCK contributed towards treatment costs of a total of 114 children treated in the infectious ward, aged between just over one month and 14 years old.

While the payments made by MCK on behalf of the children in this ward in general are modest, there are exceptions. One recent example of this is nine year old third grade student, Anjas, the fourth of fifth children, whose father is a rice seller. Anjas was admitted at the end of September suffering from prolonged severe headache, nausea and fever. Following a scan, he was found to have epidural empyema and needed a craniotomy to remove an abscess inside his skull.  The operation needed to be undertaken urgently but because the process of registering Anjas with one of the government’s insurance schemes was not yet complete the family, which had already had to bear the initial hospital costs, would have been liable to pay for it. Because the family lacked the necessary funds to do so, the operation was therefore postponed, which was when doctors contacted MCK to ask for assistance. We made a special request to one of our sponsors who generously provided the necessary funds to enable the operation to go ahead. The operation was a success and, nine days later, Anjas’ symptoms had disappeared and he was able to go home.

Anjas before the operation (left) and after the operation (right)

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