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Posts Tagged ‘Nur Oktavia’

Volunteers Inge P, Inge J and Sarah visited Cipto yesterday to find very busy wards once again.

On the Infectious ward we met Halimah, a 4 month old baby weighing only 3kg. Halimah, a Down Syndrome baby, is fighting a number of conditions including malnutrition.  We also saw Bilbina again who, we are delighted to report, will be going home tomorrow. She is still a little poorly and will need oxygen to help her recovery.

Wahyudin is eight years old. Wahyudin has suffered from kidney disease since he was three years old and has developed peritonitis as a result. He is bearing his condition well and happy to be photographed by MCK.

Wahyudin

We are also pleased to say that Rizky and Alexander, who we met on our last visit, have both been discharged and are at home with their families.

On the Cancer ward we were able to spend a little more time with Nur Oktavia (sixteen years old) and Fauzi (fifteen years old), again two patients that we met with previously. Fauzi was sleeping well when we arrived so we talked with his grandfather. Fauzi has now received chemotherapy for his condition (mediastinal tumour) and is being monitored by the doctors. Nur Oktavia has also received her chemotherapy treatment now for a soft tissue cancer, and today will have her tracheotomy repaired. Good luck for today, Nur Oktavia.

Nur Oktavia

We met with Dini, a female and also fifteen years old with a tumour in the central nervous system. Because of its location she is paralysed as a result, however her prognosis is good once the tumour is removed. The hospital will plan her operation using money raised by MCK.

And lastly we were able to spend some time with Dr Endang (Cancer Ward) and Dr Rina (Neo-natal Ward). Like Dr Yoga (Infectious Ward), they all work so amazingly hard to ensure that the patients in their care get the best possible treatment that they can at the hospital. Without the doctors, MCK could not play a role in helping the children with their treatment costs.

Good luck children!

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MCK volunteers Haidi, Inge J and Sarah visited Cipto again last week. It was a visit of mixed emotions, meeting some very poorly children in extremely difficult circumstances, yet hearing of others that had previously been helped and were now on their way home, like Isyabella. She was discharged from the Infectious Ward, a healthy girl again after spending a month on the ward being treated for Common Bile Duct Cysts.

We also visited the newly built areas of the Neo-Natal Ward, which will offer a modern unit to maternity and baby care at the hospital. Our first stop was the incubators on the Neo-Natal Ward, where we met the twins. Still unnamed, they were born at 31 weeks and are now 1 month old. They are both suffering from Sepsis, one has stomach issues, the other has liver problems. They are currently in separate incubators. Their situation, and that of their family, is harrowing, being born to a 15 year old mother who was raped. It is likely that the twins will go to a state orphanage when they are well enough to leave the hospital.

Twins

Another little boy born early is the son of Ny Aia, he also has Sepsis. When we met him last week he was but 1 week old. His mother is homeless. And M. Rizky, born at 28 weeks, needs to have an operation for a heart defect. He has to wait until he weighs 1.8kg before the surgeons will operate – he currently weighs only 1kg. His parents are destitute, living by the railway line in Jakarta. They cannot even afford to come and visit their little boy.
Lastly we met the child of Ny Aulia, born just 11 days before our visit. This little one has many complications, including cleft palate, facial deformities, a heart defect and the organs of both a male and a female. The doctors are currently deciding on the best care plan and MCK will help with the treatment.

Ny Aulia

Next we visited the Cancer Ward, where we met two new patients, Fauzi and Nur Oktavia. At 15 and 16 years old Fauzi and Nur Oktavia are the oldest children on the ward at the moment. At the time of our visit both patients were being assessed but it is likely MCK will step in to help as Fauzi’s mum is unable to make it to the hospital due to financial worries, and Nur Oktavia will need expensive chemotherapy treatment. Many of the children on the ward are being helped by MCK.
Lastly we visited the Infectious ward where we are helping with the treatment of almost all of the patients on the ward. We met Rizky, who at 8 months old is suffering from meningitis. We are glad to report that Rizky is on the road to recovery. We also met Bilbina, 3 years old, who has pneumonia and HIV, and also Alexander, 4 years old, with malnutrition and HIV. We also met with Dhi Calyono who is 11 years old. She has a prolonged fever and cancer is supsected. A lymph node biopsy this week will confirm the diagnosis.

Rizky

For all of the babies, children and teenagers on the wards, we are so glad to be able to help you and your families. We wish you all lots of love and luck on your journey to recovery and beyond.

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