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Posts Tagged ‘Ny Alif’

Today MCK friends Scott and Zack visited Cipto Hospital with volunteers Inge and Sarah for another successful visit. As you may well know, Scott is planning to run from Bali to Jakarta in just seven weeks and counting. He wanted the opportunity to meet again with the children that he is competing this epic run for.

A glimpse of Scott and Inge

 

We began the visit in the ever-crowded polyclinic where many children were waiting to see their doctors for outpatient treatment. We chatted briefly to a family whose little girl, bravely fighting Leukemia, was due to receive a consultation with Dr Endang. Another little boy, fast asleep in his mum’s arms, was waiting to see his doctor about the seizures that he has recently been having. All of the children waiting were so well behaved in a crowded, busy environment – a big thumbs up to them all from the MCK visitors today.

 

Dr Karyanti is our doctor for the children with infectious diseases at Cipto. She spent a lot of time with us this morning and was able to show us the ER room, where she has eight patients waiting for beds on her ward, and also the ward itself. We met a 3 year old girl who is waiting for a CT scan. The doctors initially suspected TB or meningitis, however it looks increasingly likely that the little girl is suffering from a congenital condition that must be investigated. MCK will pay for the CT scan so that this little one can be diagnosed and treated. Good luck, our thoughts are with you.

 

On the cancer ward we had a great time waving to Alzena. MCK volunteers have met with 3 year old Alzena before. Today she was receiving her chemotherapy, hence why we were waving from the corridor rather than chatting with her. Alzena has a neuroblastoma at Stage IV. She was happily jigging around on her bed, waving and smiling at Scott as received her treatment. We all left the ward uplifted by the spirit of this little girl, but also saddened that her condition is advanced, and that she has had to suffer so much at such a young age.

Alzena pulling a cute face to us

 

News from the Neonatal ward today is mixed. We were delighted to hear that the five babies brought to our attention as special cases in December are all recovering well and have gone home. This includes Ny Alif who suffers from thyroid problems. The conjoined twins who were separated in December have also gone hope to continue their recovery. Fantastic news for all the babies and their families, good luck and keep fighting!

 

We were deeply saddened to hear that the twins joined at the head have passed away. Our thoughts are with their family.

 

During today’s visit we met yet two more sets of conjoined twins, at one week old and two hours old! The assessment of the week-old twins is still being completed but it looks likely that they share too many internal organs to be separated. We hope for news of the two hour-old twins on our next visit. We also met a real fighter, a little boy born at twenty-five weeks weighing just 850g. The doctors are very happy with the small progress he is making and believe his prognosis to be good.

 

More news in a couple of weeks time when we will visit the wards again.

 

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Accompanying MCK volunteers Inge and Sarah to Cipto today was Cilla, from the British Women’s Association. We were delighted to show Cilla first hand how their valuable donation is used at the hospital.

On our visit to the Cancer Ward we met with Dr Endang, who showed us the new playground that has been built within the temporary hospital ward for children with non-infectious diseases to enjoy. This fantastic playground area was sponsored by an Indonesian company based in Jakarta.

New playground

Nani

Dr Endang updated us on how Nani (14 years old) is doing. At our last visit Nani had undergone many tests to establish the stage of the cancer in her leg. At a meeting on Monday of this week, it was decided that the tumour is now too big and that Nani must have her leg amputated. A heartbreaking outcome for Nani, but a necessary one, to stop the cancer from spreading further. After the operation, which is yet to be scheduled, Nani may receive chemotherapy. From everyone at MCK, we wish Nani all the very best for her forthcoming operation, and hope that we will meet one another soon.

Dr Endang also showed to us a very quiet out-patients clinic today – or so we thought. Many patients were having tests completed across the hospital and the nurses and doctors were waiting for them all to return. This outpatient clinic for children sees over 70 patients a day!

We also visited the Neo-natal ward today and were extremely privileged to meet the newly separated conjoined twins! The twins were in their own incubators in an isolation ward so we were able to see them from afar. The doctors reported that the operation was extremely successful, and although one twin has a problem with the heart, their prognosis is very good. We also met with the conjoined twins that arrived at the hospital just after our last visit. We were unable to take pictures at this time, a shame because words cannot describe how strong, healthy and happy the twins look. We wait on news from the ward regarding these babies.

On the special care ward we met with Ny Arianti who has a blockage somewhere in her intestines – a difficult case for the doctors as the baby has already had one operation to resolve the problem and it looks like more will come. And Ny Alif, with thyroid problems as such a young age. This little one was very distressed today and because of a tracheotomy cannot be given a pacifier to help him soothe. We wish both babies lots and lots of love and hope that their conditions improve very, very soon.

Our next visit to RS Cipto will be after the New Year, so we wish everyone on the wards, the doctors and nurses, the children and their families, a peaceful holiday period.

 

 

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